March Is Disabilities Awarness Month!

HeraldTimesOnline.com

EDITOR’S NOTE: March is Disabilities Awareness Month. In observance, The Herald-Times is offering a set of six essays by people with disabilities. They will write about what they would like the public to know about a person with their specific disability. This is the second story in the series.

What is your disability?

Hear members of the community speak about life with a disability March 26 at Ivy Tech’s Lamkin Hall in a panel discussion from noon to 2 p.m. The event is part of the Council for Community Accessibility’s Disability Awareness Month Activities.

Panelists will answer questions about their lives. Feel free to ask that question you’ve always wondered about. Bring a sack lunch; snacks will be served.

If you need an interpreter, call Craig Brenner at 812-349-3471

Man with intellectual disabilities has a full life

By Aaron Smith Special to The Herald-Times
March 16, 2012like the public to know about a person with their specific disability. This is the second story in the series.

Intellectual disabilities are disabilities that are characterized by significant limitations both in intellectual functioning and in adaptive behavior. It covers many everyday social and practical skills. This type of disability originates before the age of 18. Two of the types of the intellectual disabilities that I have or have had are: Autism/Pervasive Developmental Disability (a spectrum disorder) and epilepsy (a seizure disorder).

I was diagnosed with autism in 1998. I had some challenges with autism like making new friends and interacting with them, and ordering at a restaurant, and had trouble speaking in front of people. I also was bullied a lot in eighth and ninth grade.

But good things happened to me at school, too. I got to manage some of the sports teams, and the guys were really nice to me. One gave me an award, which was for the No. 1 manager. I graduated from high school with a diploma.

Epilepsy often goes along with autism. My seizures started when I was 10 months old and lasted till I was 14. They affected me in many ways. I had to take strong medicine that often had bad side effects. It was hard at school because I had to go home from school after I had a seizure. I had trouble interacting with my friends. I also missed class time.

My life with autism now is great because I have a good job at the Goodwill store on the west side of Bloomington and I am the president of the Aktion Club of Options Bloomington, and Bloomington Self Advocates. I like my Life Designs classes and activities, too. I am also a member of the South Central Indiana Kiwanis Club and the Council for Community Accessibility. I bowl and play basketball with Special Olympics. I have won 4 bronze medals and received 5 ribbons.

I have good friends. I am looking forward to having my own apartment. I would like to learn to drive. My disabilities will not keep me from having a full life that I enjoy.

 

Living with post-traumatic stress disorder a constant struggle for man and his family

By Ian Long Special to The Herald-Times
March 17, 2012

It is hard to explain to someone how it is a daily struggle being in pain, physically ill, and having a mental block while your outside physical features reveal no signs of an aliment.

Invisible illnesses like post-traumatic stress disorder (PTSD) and depression are frustrating enough to deal with by themselves, but when you compound them with other disabilities; it is like having a levee ready to break.

The general public’s perception of PTSD ranges anywhere from assuming that an individual will become aggressively violent and go “postal” at a moment’s notice to thinking that an individual is faking.

There is a major misconception that a traumatic event has to be a horrific event on a mass scale over an extended time period. An individual can suffer from PTSD after an event that lasted only one second. The event only has to be perceived traumatic to that individual and cause the mind to have difficulty coping with the event. It is not something that can just be dismissed and forgotten with the blink of an eye — because the traumatic event’s image is sketched into your eyelids.

I wish it was something that I could just forget and dismiss; however, living with PTSD is a constant struggle for me and my family. I have good days and I have bad days that can be triggered by any number of things. Therefore, most of my immediate family knows that I suffer from PTSD and my wife helps me avoid and de-escalate the triggers. I have found that I frequently have to walk away from the general public when I feel my PTSD symptoms start to surface.

Once I disclose my PTSD to others, like my college professors, they often treat me differently. One professor told me that I would have stress in life so I should just deal with the stress of my PTSD the same way. If only doing so was that easy. One of my biggest symptoms of PTSD is anxiety that causes a mental block. I just mentally freeze when put under mental strain.

Taking tests is almost an insurmountable task for me. I have started therapy and taking medication to try to help control the symptoms, but it will take time. I want to have a normal existence and realize that I will have one in time. In the interim, my hope is that people become more aware of PTSD, the effects of it, and the realities of it.

Like most military personnel, I was thankful to be given a chance to do my part. I do not regret the military service that bestowed my disabilities upon me; however I do begrudge the general public’s conception or rather misconception of my PTSD disability.

My story is the story of so many servicemen and women who suffer in silence. We did our part, and now we ask that the general public do their part in accepting us back into society.

 

Disabilities are a natural part of human experience

By David Carter Special to The Herald-Times
March 18, 2012

The first thing many people notice about  me is that I use a wheelchair. What is not visible is that I have been using a wheelchair to get around for almost 37 years; since well before the Americans with Disabilities Act. I have seen the changes from a largely inaccessible urban environment to one which is mostly accessible, allowing those of us in wheelchairs “to boldly go where everyone else has gone before.”

When I was paralyzed, I was 32. I was pretty strong, and was able to wrestle my wheelchair over bumpy ground and other minor barriers. I have been leading a normal life; I cook, I do laundry, I drive myself places, I ran my own business, I shop, I changed my son’s baby diapers, and I make mistakes, like anyone else.

Now, I am 69, and am beginning to feel the effects of aging: arthritic fingers, sore shoulders, and other aches and pains and health problems which somewhat limit my ability to do what I’m used to doing with ease. I do still drive myself to Indianapolis, Bloomington, and elsewhere, regularly and often, but I am more easily tired.

This aging stuff is something I am getting accustomed to, just as, years ago, I had to get accustomed to life in a wheelchair. Neither experience is particularly interesting, except to myself, and isn’t the sort of thing others really want to hear about at any length.

And yet, we people with disabilities are frequently given the opportunity to attempt to make others aware of what life is like with a disability. For me, being asked about using a wheelchair is much like me asking you how you feel about tying your shoes. It’s something you learned to do quite a while ago, but you have moved on to other things; although you do still do it, it seems odd someone would want you to talk about it.

The truth is, disabilities are a natural part of the human experience, and, while you may not have one, a great many people everywhere do. For me, living with a disability has become normal. Most of the barriers which make difficulties for me are because of the thoughtless way things are made, not because I can’t walk.

 

She offers a voice to those with mental illness

By Rachel Roby Special to The Herald-Times
March 19, 2012

Living with mental illness is a lifelong journey. Although I was not diagnosed with any mental health disorders until my late 20s, I always sensed there was something terribly wrong.

As a young child I was shy and withdrawn. My adolescent years provoked a feeling of not being comfortable in my own skin. I was anxious and full of fear. These feelings were so intense I had thoughts of wanting to end my life. I was 13. When I entered into my teenage years, I had abysmal bouts of depression. I remember feeling isolated and lonely. I developed anorexia. School was difficult and challenging. I was very bright; on the other hand, I lacked motivation and concentration. Guidance counselors made a few attempts to intervene, but I was defiant. I was terrified to tell anyone about my feelings. But how could I? I had a brief understanding about mental illness; nonetheless, I convinced myself I was not crazy.

My mental state deteriorated rapidly while I was attending Ball State University. My anorexia developed into bulimia. Sadness and erratic behavior plagued every facet of my being.

I had uncontrollable crying that was always followed with grandiose idealizations of myself. Somehow I continuously accomplished an external appearance of success, determination and efficiency. I was very good at masking and making myself to appear “normal.” Inwardly I was spiraling into a darkness of self-hatred, emptiness, fear and confusion.

Ultimately my mental illness became physically noticed. I lost all facial expressions, I appeared blank, I appeared shallow. I could no longer put on the masquerade. Most of my relationships were stormy. I was not able to experience close relationships. I had trouble with employment. I could not keep a job, and I became a transient. I was already being eschewed by society, therefore I lived in shame.

I was too scared to ask for help. I did not want to be labeled as a crazy woman.

After being hospitalized from a suicide attempt, I was finally ready to face the truth, seek treatment and face the reality of mental illness. I already had my own misconstrued concepts about mental illness.

Even my own prejudices were inaccurate. It is quite difficult to describe the suffering one endures with mental illness. Once diagnosed, there must be a process of acceptance. I was not shocked, I was not in denial anymore, but I was scared. I did not know what to expect. Will I live in an institution? Will I be able to work? What will I tell my family? Will I get worse? Will I have to take medications for the rest of my life?

I took my recovery one step at a time. First, I sought treatment. I found a wonderful therapist that I still meet with weekly. Next, I met with doctors to discuss medications. I learned that taking medication is essential to my recovery. Taking psychiatric medications is the same as diabetics taking insulin.

I educated myself about my diagnoses. I practice meditation and spirituality. I write poetry, and I share my experiences with others. Once I started to heal, gradually my life seemed more normal.

Most of my fears about mental illness were put to rest. All of my preconceived notions of the mentally ill were dismissed. I do not like words like “unstable,” “unbalanced” or “moody.” I do have different ways, atypical patterns of behaviors and peculiar mannerisms.

What should others know about interacting with me? If you don’t know anything about me, there is nothing special you need to know. I am just another person who has a medical condition which is being successfully treated. If you know about my condition, then treat me no differently than you would treat someone with diabetes, arthritis or a broken arm.

Finally, if you know about my condition, and you or someone close to you has similar problems, use me as a resource as a person who knows exactly how you feel and what you are facing.

Today I am grateful for my mental illness. The suffering I endured for a good part of my life has taught me human compassion; I understand people, and I see individuals for who they are and not what they are. I have limitations, and I will always have daily struggles and challenges. There is nothing to be ashamed about having a chronic brain disorder. I speak openly about my challenges with the simple idea of being a voice to those with mental illness. I offer hope by telling my story.

Being of service and advocacy to those with disabilities has been most essential to my own recovery. I am inspired by Harper Lee’s theme from ‘To Kill a Mockingbird” “You never really understand a person until you consider things from his point of view … until you climb into his skin and walk around in it.”

We are making progress on total acceptance and tolerance, but we still have a long way to go. I do not walk with my head down because I am mentally ill. I walk with my head up as a person with mental illness.

 

 

Rebecca’s Story won and was featured in the National Down Syndrome Society February e-newsletter.

“Surprise!”

By Cyndi Johnson

Last August when I searched the yellow pages for dance classes for my 4-year-old daughter, Rebecca, I had no idea of the surprises that lay ahead.  I picked up the phone and called one of the numbers listed.  “Do you offer classes for preschoolers?”  The answer came, “Oh yes, we have a combo class…”  But the tone changed dramatically when I asked if they could accommodate a child with Down syndrome.  “No, we can’t…”   I dialed a second number and then a third, but the response was the same each time.

Determined, I dialed yet another number.  “Do you have any openings for a 4-year-old girl?”  When the instructor indicated there were spots available in her preschool class, I simply said, “I’d like to register my daughter…”

I did not mention Down syndrome during the phone conversation but decided to go early to the first class to speak with the instructor directly.  When we arrived, you could have toppled the instructor with a feather.  There stood Rebecca—tiny for her age due to her medical conditions—in her pink leotard and tutu, clutching her ballet slippers and tap shoes, her eyes sparkling through her glasses.  The instructor broke the silence, “She can’t possibly be 3 yet,” to which I replied, “Rebecca actually turned 4 a few weeks ago and had a ballet birthday party!  She dances every day.  She has some issues like low muscle tone and hearing loss, but I believe she’ll do fine.”  The instructor began lecturing me on how Rebecca must listen and behave appropriately if she was to participate, when in walked another mother with her daughter.

What happened next took everyone by surprise.  This little girl also wore a pink leotard and tutu, but she shared something else in common with Rebecca.  It was obvious that she too had a disability—some physical limitations and eyeglasses with thick lenses.  The expression on the instructor’s face turned from surprise to resignation, and she directed the girls to choose a colored square on the studio floor and have a seat.

Other girls arrived, and class began.  Rebecca followed directions, waited her turn, and even put on her own tap shoes.  She only needed help tying the laces (as did all the girls!).  Rebecca’s ability and cooperation clearly came as a surprise to the instructor, and she exclaimed after class almost in disbelief, “Rebecca did a great job!”

Over the next several weeks, Rebecca surprised even me as she learned the entire dance routine and performed in her first recital.  Her father and grandparents were in attendance and were astonished.  I watched proudly as other onlookers pointed her out and described her performance as “impressive,” “adorable,” and “a show stopper.”  Afterward, the instructor gave her a hug and warm words of praise.  In the end, I suspect she was the most surprised of all—not only by Rebecca’s capabilities, but also by the transformation that occurred within her own heart and mind.

Art of Chocolate fundraiser kicks off week of sweet treats

Double chocolate pecan truffles from Angel B's were on display. Christy Mullins | Herald-Times

Crowds of chocolate lovers gawked Sunday at a massive wedding portrait made entirely out of candy.

The bride wore a white Tic Tac gown and rock-candy veil. Black M&Ms made the groom’s suit. A rainbow’s variety of Nerds, all separated by color, made the bouquet. Black licorice rope outlined each flower.

People who paid $50 to be at the IU Art Museum stood in front of the candy portrait and giddily found Red Hots, Twizzlers and chocolate sprinkles.

“Love Sweet Love” took 40 hours to finish and wore a $5,000 price tag. It didn’t sell at Sunday night’s Art of Chocolate fundraiser, but it won Best in Show.

“I ate so much candy making this,” artist Lindsay Schroeder said. “I used six spray cans of finishing lacquer.”

Schroeder was inspired by a similar candy portrait of Beyonce that she saw on her honeymoon at the Ripley’s Believe It or Not Museum in Orlando. So she decided to use candy to commemorate her wedding day and wouldn’t have been upset if it sold. “I can always make another one,” she said.

The Art of Chocolate fundraiser kicks off Bloomington’s Week of Chocolate each year with chocolate and wine tastings, live music, gallery tours and a juried art auction. Tickets, donations and art sales benefit LifeDesigns Inc., a non-profit agency that provides services for people with disabilities.

LifeDesigns will use the money raised from this year’s event to supplement some of its programs that lost some funding from state budget cuts, such as its education and work experience programs.

The turnout seemed on par with previous years — about 250 people on average — LifeDesigns CEO Susan Rinne said. Ticket sales were good, but organizers were nervous about the IU vs. Iowa basketball game happening at the same hour. Last year, the Art of Chocolate event drew more than 250 people and raised $28,000, both all-time highs.

Nevertheless, Rinne said she was excited as always about this year’s event, which pulled creativity from 15 artists and 11 local bakeries and restaurants. She had a taste at each vendor, to be fair.

From Angel B’s Galleria of Cakes there were cake truffles — not as rich as a traditional chocolate truffle, less expensive and with more flavor options, chef Mark Brethaur said. He and his wife, Loretta Brethaur, brought cake truffles in three flavors: double chocolate pecan, strawberry amaretto with white chocolate, and coconut rum with marzipan and candied orange peel, dusted with vanilla sugar and dipped in milk chocolate.

First-timers to the event, Feast Bakery Cafe brought classic hot chocolate with chocolate marshmallows made in house, and a handful of fancier treats. Dark chocolate creme brulee, bittersweet salted budino and hazelnut feuilletine mousse went fast. Feast chefs ran out of house-made tortilla chips for a popular chicken mole sauce, made with half a cup of chocolate.

Malibu Grill served Godiva Double Chocolate martinis made with Godiva white and dark chocolate liqueurs, creme de cacao and vodka.

There was no shame in pairing a martini with a glass of wine from Oliver Winery upstairs.

Artists on Sunday were asked to show how their artwork displays or represents the concept of “cultivating inclusion.”

Bloomington painter Dan Alexander started and finished a portrait of Martin Luther King Jr., using melted Nestle chocolate, milk and food coloring. He worked busily and fielded questions from casual wine tasters and truffle eaters. The most common question: Can you eat it?

“Yes, obviously,” Alexander said, and licked his paint brush.

He hoped to sell the painting for $400.

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Other Week of Chocolate events

Chocolate Bingo — 6-10 p.m. Monday at the Bloomington Moose Lodge #1081, 1580 W. Bloomfield Road. Bingo winners will be given cash and a chocolate treat. Players will be able to buy a meal and beverages. The basic admission package costs $25. Call 336-5281.

Making Truffles — This truffle-making class benefits Martha’s House and will take place 6-8 p.m. Tuesday at the Bloomington Cooking School at 115 N. College Ave. Participants will take home samples and enjoy a light dinner. Admission is $45. Call 332-1444.

Chocolate Olympics — 5:30-7 p.m. Wednesday in the Girls Inc. gym at 1108 W. 11th St. Competitions include a scooter obstacle course, hoop shoot contest, jump rope contest and cookie decorating. Admission is $5 per person or $15 per family. Call 336-7313.

Death by Chocolate Interactive Murder Mystery: “Murder in Casino City” — This event, benefiting Citizen Advocacy of South-Central Indiana, will take place at 7 p.m. Thursday at St. Mark’s United Methodist Church, 100 N. Ind. 46. Attendees will enjoy Lennie’s decadent chocolate dessert with tea or coffee while watching a live play in which actors perform and drop clues about who committed a murder. They will then try to figure out “who dunnit.” Admission is $17 per person; $30 for two. Advance purchases are encouraged. Call 219-5566.

Chocolate Prom — 8-11 p.m. Friday at Rhino’s All-Ages Club, 331 S. Walnut St. There will be dancing to live music and free chocolate treats. Formal dress is optional. Admission is $10 per person or $15 per couple. Call 333-3430 or visit www.rhinosyouthcenter.org.

Sundaes on Saturday — 1-4 p.m. Saturday at the Monroe County History Center, 202 E. Sixth St. You will be able to design and eat your own sundaes with Bruster’s ice cream and chocolate toppings, learn the history of ice cream making, and enjoy old-time music. Admission is $2 for adults, $1 for children ages 6-17. For members, it’s free. Call 332-2517.

Wonka’s Chocolate Carnival — This event, benefiting Amethyst House, will take place from 3-6 p.m. Saturday at the Boys and Girls Club of Bloomington, 311 S. Lincoln St. The carnival, inspired by the movie “Willy Wonka and the Chocolate Factory,” will feature games, activities and contests. There will be loads of chocolate delicacies, including a chocolate river. Admission is $5 per person or $15 per family. Call 336-3570.

Article Source: Christy Mullins, Herald Times Online

New LIFEDesigns a Well Designed Merger of Equals

LIFEDesigns Collage

With the start of a new year in a few days time, a new social service agency will be born. The agency will be doing the work of two other agencies that have for many years sought to improve the lives of people with disabilities.

Those agencies, Christole and Options, will be no more, with the new LIFEDesigns assuming their functions.

Although there will be no layoffs with the merger, it still will save an estimated $200,000 annually and eliminate inevitable redundancies, particularly in administration.

The two organizations are complementary rather than competing, with Christole mostly operating group homes and apartments to house and care for clients with disabilities, while Options provides mostly in-home services to a similar group of client families. Not only will LIFEDesigns create savings, it will provide the opportunity for staff to move laterally or seek promotion within a larger worker pool.Susan Rinne, former Options’ Executive Director

The agencies fit well together and want this new agency to be seen as a merger of equals rather than as a takeover. Options, with a budget of $6.5 million, is somewhat larger than Christole, with its $4.1 million budget. Together, they’ll have the weight and buying power of a $10 million budget.

This is not the only merger on the horizon among social service agencies — with Bloomington’s several homeless shelters also working to come under a single umbrella.

In these times of great need and declining resources, it is wise to seek the efficiencies and reach that a larger operation provides. The concern, of course, is that the core mission of each agency is not lost. LIFEDesigns took a year and a half and a lot of work to create, work that’s necessary for success.

SOURCE: HeraldTimesOnline.com 2011

 

Christole, Options merging

Screen shot 2012-01-06 at 9.10.46 AM

Two agencies that serve people with disabilities will become LifeDesigns.

Susan Rinne, Options’ executive director

Susan Rinne, Options’ executive director

Christole and Options, two organizations that provide services and support to people with disabilities in south-central Indiana, have agreed to merge into a single entity — LifeDesigns Inc. — effective Jan. 1.

“I’m excited,” said Susan Rinne, Options’ executive director. “We’ve been working on this for the past year and half, and it’s wonderful to see it finally coming together.”

Rinne said merging the two organizations will save them a total of about $200,000 a year through reduced administrative costs, audit fees and insurance costs.

“The biggest savings will be on the health insurance side,” she said. “By becoming a bigger group we will be able to get lower rates for our full-time employees. And by having just one audit instead of two, and by putting our two administrations together, we will save money there as well.”

Bert Clemons, president and CEO of Christole, said LifeDesigns will be run by a single, 23-member board composed of members of each organization’s current boards, and the new organization will handle all the fundraising and have a single endowment fund rather than two separate ones.

“The two organizations have the same mission,” he said. “We want people with disabilities to live as independently as you or I.”

LifeDesigns’ annual budget will be $10.6 million — combining Options’ budget of $6.5 million and Christole’s budget of $4.1 million.

Clemons and Rinne both said they do not expect the merger to result in any layoffs.

“We will be able to bring everybody on board,” Rinne said. “That’s possible, in part, because over the past year, each organization has not filled positions that have opened up in anticipation of the merger.”

For example, she said, when Christole’s chief financial officer resigned last year, that position was not filled because of the impending merger. LifeDesigns will have just one chief financial officer. Rinne will serve as LifeDesigns’ chief executive officer and Clemons will be its chief operating officer.

Marianne Stemm, Christole’s human resources director, said, “Most of our staff are excited about the merger because it will provide them with more opportunities for lateral moves and promotions and advancing their careers.”

Rinne said the two organizations are now filing paperwork with state agencies informing them about the name change, and bringing the two agencies’ computer and human resources systems together.

“The reason for naming the new organization LifeDesigns is to emphasize that this is the merging of two equals into a new entity, not one group taking over another,” Rinne said.

Complementary services

Clemons said the merger will bring together two organizations with different strengths. He said 90 percent of Christole’s services are provided in group homes for people with developmental disabilities or autism and 10 percent are provided in clients’ homes or apartments. With Options, those percentages are reversed.

“There’s not much overlap,” he said. “It’s two agencies with complementary services that are coming together in one organization.”

LifeDesigns’ main office will be at 200 E. Winslow Road, Options’ current home.

Clemons said a decision has not yet been made concerning the future of Christole’s office in Nashville. Rinne said the new organization will serve more than 350 individuals in Monroe, Greene, Brown, Morgan, Lawrence, Owen, Bartholomew and Johnson counties.

Rinne said LifeDesigns hopes to have its new website — lifedesignsinc.org — up and running in January, and by next summer or early fall plans to complete its $1.1 million building project that will replace one of its aging group homes and add four affordable housing units to be rented to low-income members of the community.

Source: Dann Denny, HeraldTimesOnline.com 2011

Options enters the age of social networking!

CEO YMCA

If you’re on Facebook, sign up now to become a “fan” of Options.

“Like!” us and share the word about Options with your friends. Simply do a Facebook search for Options and click on the response that shows our logo.  Becoming a fan will provide you with frequent updates about the people and events that are important to us.

It will also help us to spread the word about Options to your network of friends on Facebook! Thanks for helping Options get started on Facebook!